I started writing this yesterday but clearly never finished. So the todays should be yesterdays. But now Im too lazy to go through and switch everything.
Today was my appointment in Boston. In my mind I had things going one way. How they played out was another.
Dr Rotow agreed with Dr Piper about my next treatment. What she didn’t agree with was me waiting until after April vacation to start treatment. She Said at minimum I should be starting the chemo as soon as possible.
I learned a lot today. Confirmation that I have LMD although I am not sure I needed confirmation but maybe to hear the words out loud and not just read them in my chart. Confirmation that I am moving onto my second line of treatment. Which means it’s one less tool I have in my pocket. Dr Rotow said that there is a med coming up for FDA approval that could be my next step if this combo doesn’t work. But it’s not up for FDA approval for six months. So fingers crossed this holds me over. As she was leaving I told her I would see her again in 2 years and I have more fight fight.
I have also decided to have a port put in. My last scan took 5 nurses and 6 pokes before they could get an iv in me.
I am scared, I am nervous, I am sad, and I am thankful. I am a person that likes a plan. I don’t like the unknown. I don’t like surprises. there is nothing about this cancer journey that has been predictable.
I have done a lot of research about side effects. I am told days 4 & 5 are the worst. I am thankful that my days four and five will be weekends.
Today I have been doing a lot of thinking about my treatment. I know I have a village supporting me. I know I have so many people cheering me on. Often times I go back and read the comments from the Facebook posts or the texts and the cards I have received over the past two years. They are what get me through the hard days….Please keep them coming.
Im also wanting to try and move my blog over to a platform that supports comments. Or maybe is even easier to use than what I am. But I don’t know how to switch platforms and take everything with me. And I don’t want to spend a small fortune on it. So if anyone has any suggestions or and can make it idiot proof for me that would be great.
Thank you to everyone that has shared my story, has reached out, dropped off meals, prayed for us.
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