
Today was my week three for chemo. Good news is I dropped one chemo but added in the amivantnab. I was a little nervous to add it back (last time I had the reaction, they challenged it I did fine, they put it up to full speed and I had a reaction). My doctor did extensive research-called the company that manufactured the drug, reached out to colleagues. It was decided we would try again.
so this weekend I started my steroids (it’s so fun getting up for the day at 2;00 in the morning.). i went in today with a plan in place. If I have a reaction it stops immediately and I try again tomorrow. Within two minutes I was turn flush and having tightness in my chest. Nurses were in my bay, Dr Piper came right in to check on me. I was given the max benadryl and watched for an hour.
Tonight I am exhausted from the benadryl and lack of sleep. I go back tomorrow morning at 8:00. I’m not sure what tomorrow is going to bring. I am hopeful I do it okay on it. But time will tell. thank you to everyone that has sent messages of support today and thought good thoughts. I appreciate it more than you will ever know!!!
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