Today’s update.

 Fenway bc I love it!

Fenway bc I love it!

Today was my week three for chemo.  Good news is I dropped one chemo but added in the amivantnab.  I was a little nervous to add it back (last time I had the reaction, they challenged it I did fine, they put it up to full speed and I had a reaction).  My doctor did extensive research-called the company that manufactured the drug, reached out to colleagues.  It was decided we would try again.  


so this weekend I started my steroids (it’s so fun getting up for the day at 2;00 in the morning.).  i went in today with a plan in place.  If I have a reaction it stops immediately and I try again tomorrow.  Within two minutes I was turn flush and having tightness in my chest.  Nurses were in my bay, Dr Piper came right in to check on me.  I was given the max benadryl and watched for an hour.     


Tonight I am exhausted from the benadryl and lack of sleep.  I go back tomorrow morning at 8:00. I’m not sure what tomorrow is going to bring.  I am hopeful I do it okay on it.  But time will tell.  thank you to everyone that has sent messages of support today and thought good thoughts.  I appreciate it more than you will ever know!!!  

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