Sorry.

 I know it has been a while since I have posted.  I am sorry.  September was a busy and exhausting month for me.  So here's an update:

Kids started school the beginning of the month.  I can't believe I have 2nd grader and 5th grader!!!  Both boys are loving their teachers and for the most part are adjusting back to school well.  

Baelor had a birthday the middle of the month!  He enjoyed everything about his birthday.  Friends, family and good times.  

I had my scans the middle of the month. (the day before Baelors birthday).  Everything came back good.  no progression.  Which is what we always strive for.  

I had my last infusion the middle of the month.  This time it kicked my butt.  The head sores have been horrible.   There have been many days that I have just cried because it is so painful.  I have been unable to put my head under the shower head because of the pain.  I cant even describe the feeling.  There is scabing, there is pulling.  I am losing my hair (not all of it just areas of it.)  I have been put on numerous medications, ointments, creams, oils, drops in hopes of clearing it up.  I have shed many tears over my hair.  The oozing is finally starting to slow down and I think I have finally turned a corner.  

I am embarrassed by my hair, I am sad that it is falling out.  I know I shouldn't be.  

I know it will all be okay.  But honestly, the head sores have been tough.  I am more depressed than I have been, I am sad.  I am sad that my head is starting to feel better and I have another treatment this week.  So, although I am happy that it is feeling better I am sad that I know it won't last long.  I will take it while I can. 

I am realizing this is one more thing that this horrible disease has taken from me.  

I am going to try and get better about posting regularly.  Thank you for everyone that has checked in on me when I have posted.  I appreciate it.  

And here is my shameless plug for my walk.  I am a long way from my goal.  I know times are tough for so many.  But any amount big or small is much appreciated.  

Feel free to share my story-share my fundraising-join my team or offer words of encouragement.