So I had my drs appointment today and then infusion. I had decided that I was throwing in the towel with the Ami. That I can’t keep doing the side effects. But a part of me was hesistant. I’m scared of the unknown. I’m scared of the side effects of the new beds. I am scared the grass isn’t always greener in the other side.
Thankfully (I think) the decision was essentially made for me. I sat down got my premeds, got my pen, was feeling great. Took a nap while Emily ran out to get some lunch. Had my lunch and then it happened. Gradually my head got uncontrollably itchy. All over my head. It was a different itchy then my scab itchy. Then the chest tightness started. I called my nurse over she got the crew with one word-reaction. I had four nurses in a doctor in my cubicle within seconds. The infusion was stopped benadryl and Pepcid were given. Within minutes the chest tightness started to fade. The itchy head calmed down. We waited a half hour and it was still there so I got a steroid. That did the trick. I knew then that a I wasn’t having anxiety with the chest tightness. And that I had made the right decision to make the switch. My body just can’t handle the Ami. Good news I got almost a half dose in me. Even better news is they have already started the process of having the dato approved. I shouldn’t have any lag time between my two treatments.
I’ll lose what little is left of my hair, I’ll be tired and have nausea but n time the sores should heal. Ami isn’t off the table forever. I can rechallenge it in Dato stops working. I’ll start hopefully the week after Christmas so I can enjoy the holidays with my boys.
Wish me luck!
So thanks for the memories (even if they weren’t good) Ami. It’s been real (not real fun!) thanks for keeping me alive. I won’t be sad to see you go! Till we don’t meet again.
Comments
Post a Comment