So it’s a treatment week- I had an unexpected visit to the dermatologist this week. My head sores are getting worse. My toe and head are both infected. We added another stronger artiblotic and a steroid. I am hopeful that this will help clear up the infection and give me some relief. But I'm not feeling confident. You see I have treatment this week. Pending 1 don't have another reaction. I talked with Dr. schwager (dermatologist) and Dr. Song about switching treatment. The scary thing is this would be it for treatment for me. Currently I am on Ami , prior to going out on leave I had talked dr piper about switching to dato-Dxd. Ultimately every thing looked good on my scans and the side effects weren't horrible so we decided to stay on the ami. Knowing there wasn't anything after I decided to ride it out. But I think my ride is coming to an end. I've always said my quality of life is important. And the quality I have right now is garbage.
So here I an having to make one of the most important decisions of my life. Do I continue to suck it up and deal with the side effects. Or do I switch to what could potentially be my last treatment option. Neither have a long average of keeping the cancer from growing. So eventually 1 would switch. Ami on average holds the cancer at bay for 6-8 months. I'm currently on month 5. Dato is the same, I believe.
What would you do? Would you continue the shitty, painful med- the one that I have been allergic to. Or the unknown. The side effects aren't reported as bad, but different. Hair loss -Honestly I have a huge bold spots from the sores. And I'm ready to shave it off and probably would if it wasn't for the sores. 1 believe nausea is one them fatigue. This I have had with Ami, tagrisso, and pen.
Thursday I'll talk with Dr. Song. I don't know if a decision will be made this week if I'll have my next dose of Ami. Or if we will Wait until dr Piper comes back.
What I to know Is I have an incredible support. My family. My friends are like that family. My community. . My work friends that reach out when I'm having a bad day. The school that has wrapped our boys in love and support. Everyone that has offered to help make this Christmas special for the boys-thank you, i appreciate of all you and don't know what I did to deserve all this love.
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