from here? From January 6th-to January 31st? Where in the world did the time go? As you know A LOT has happened!!! So much has happened. And I don't even know how it happened.
So lets back things up. January 6th I had treatment-had an allergic reaction went to the emergency room, got a private room in Peabody and spent a couple of nights. No big deal home on Thursday.
Made it through the weekend. Hung out with the family didn't do much errands and life.
Sunday January 11th couldn't get into bed. Bryan had to life my legs into bed. Monday was doing better but still not 100%. Tuesday January 13th had fluids scheduled and was having trouble walking. Went down for fluids in Peabody and had a meltdown about the pain. Dr. Piper was in but couldn't see me. Wanted me to be see in Emergency room. So off I went. Ran some tests but ultimately needed more tests to be run and because of my VP shunt had to go to Burlington so they could check my shunt pressure. So later that afternoon I went to Burlington for an MRI. Which landed me a bed. Tests started around midnight on the 13th. Plan was put into place for a team meeting to discuss what my options are and how to further treat my pain. The new medication take awhile to get into my system. Essentially its a try some, wait and see if it works, make adjustments wait and see if it works make some more adjustments wait and see if it works. The new medications take a good 5-7 days to get into my system.
So here we are. January 31st-no medications aren't perfect but we are closer than what we were a week or so ago. We are closer then what we have been.
I've learned a lot the past couple of weeks. Pain doesn't stop for anyone. It just keeps moving along. Life keeps moving along when you are in pain. It doesn't stop to slow things down. It just keeps moving and moving. But the people that love you stop and make sure you are okay. This was a huge help!!
Although nothing stops moving, the fact that you have people checking in on you helps a ton!! I couldn't be more thankful. There weren't any days that I didn't have a visitor or a text or a phone call at the hospital. People were checking in on me and seeing what I needed what they could do. The nurses and doctors and staff were incredibly caring and sympatric. They watched after me like I was family. Their love and dedication shined through!! I don't know what tomorrow is going to bring. I don't know what next week is going to bring but I am still committed to fighting this horrible disease. I am committed to fighting it until the very end.
Baelor has been incredibly scared. He doesn't like my new hair-who can blame him it came on quick and sudden. There was no planning this. And like his mama he is a planner. But we are working towards this. We are working on what his needs are and how to comfort him going forward.
I have been able to educate people about my story-which is eye opening for me. I hate my story but love sharing what it is about. Its not for everyone and that is okay. But if I can change one stigma then I have done my job and I am happy that it is complete. It will take time. And time is what I have right now. I passed out more cards with my blog name on them then I have in the past. Education is key to this disease. Please keep educating!! Please keep telling my story. One day I will see my blog post being read at 250+ within a couple of days of reading. One day I will see it shared 50+ times!! Help me reach this goal!!! Even being shared 10 times would be a huge win for me!! Lol. Tell me what you want to hear about. Do you want the good the bad and the ugly of my how many times have you pooped. Do you want to read about the kids and sharing their story. What are my plans now? (I'm not going to disney...lol). How did it feel to lose my hair? So weird. Incredibly weird. Also my head doesn't not feel as smooth as a baby bums right now. There are so many options out there to talk about and how it is not only effecting my life with cancer but everything around me. I never thought I was a good writing but I have taken too it. And although I dont think I am the best writer I am here to write my feelings. So hit me up with what you want to read. Maybe one day I will go famous from all this writing. lol.
Till then keep sharing my story!!! And leave a message on my blog!!! Love you all!
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